Since Mom Died

1Chapter one

Mom did everything, and now Dad can't manage: the list of what she did that nobody wrote down

She never wrote it down because she never had to. Here is the list, and a way to split it three ways that leaves him some dignity.

Mom did everything, and now Dad can't manage. You have said that sentence to a sister or a coworker in the last month, and the odd thing is how little it explains. He is not helpless. He built the deck. What he cannot do is run a house, because for fifty-odd years the house ran on a system that lived entirely inside your mother's head, and she took it with her.

The National Institute on Aging says the same thing in calmer words. Its page on coping with grief and loss notes that many couples divide up their household tasks, one paying bills and handling car repairs, the other cooking meals and mowing the lawn, and that splitting up jobs often works well until there is only one person who must do it all. That is the whole problem in one sentence, and the fix starts with writing the system down.

Why the list has to exist on paper

Her system was invisible because it worked. Nobody writes down a thing that has never once failed. Now it has failed all at once, and Dad is standing in the kitchen looking at a stove he has never turned on. The only way to make that less frightening is to make it smaller. A list turns "everything" into forty lines, and forty lines can be shared.

The NIA's getting started with caregiving page lists the tasks a caregiver ends up helping with, and it reads like your mother's week: shopping, laundry and cleaning; preparing food; talking to doctors, coordinating appointments and keeping track of medications; transportation; paying bills and organizing documents. That is your outline. Its advice is to tackle one task at a time, which is also good advice for Dad.

The list itself, the way she actually ran it

Write it on a legal pad at his table, with him. Ask him what she did, and let him tell you. He will remember more than you expect.

Every day

  • Breakfast, lunch, dinner, and the fact that they happened at a time.
  • The pills, and the "did you take them" at breakfast that he never noticed was a system.
  • The dog, the bird feeder, the plants.
  • The dishes, the counter, the trash, the coffee pot set up for the morning.
  • The phone. She answered it, screened it, and knew which calls mattered.

Every week

  • Laundry, folded and put away where he can find it.
  • Groceries, and the list that came before the groceries.
  • The trash to the curb on the right night.
  • Church, and the coffee after church, and the people who asked after him.
  • The Sunday pill box refill, which gets its own chapter.
  • Clean sheets, clean towels, the bathroom.

Every month and every season

  • The bills: which are on autopay, which come by mail, which she paid by check at the table on the first.
  • Prescription refills, the pharmacy call, the haircut, the dentist, his check-up.
  • The furnace filter, the gutters, the salt bought before the first ice. The winter chapter walks that one.
  • Car registration, the inspection sticker, property tax, the fat insurance envelope every fall.

The last column is the one she never wrote down: knowing when he was quiet because something hurt, making the doctor's call he would never have made, and being the reason the house had people in it. You cannot assign those lines. You can only notice when they are empty.

Three columns: Dad, you, and a helper

Put three columns next to the list. His name goes first, and next to more lines than you think. A man who has never cooked can still put a plate in the microwave, take the trash out on Tuesday, and call the pharmacy if the number is on the fridge in large print. A list where his column is empty is not a plan, it is a verdict, and he will read it as one.

Your name goes second, honestly. The NIA's page on sharing caregiving responsibilities suggests naming one primary caregiver and holding the family conversation about who does what when there is not an emergency, because a calm discussion prevents confusion later. With siblings, that conversation happens once, at his table, with the list in the middle, not by text at eleven at night after a bad visit.

The third column is the one families resist. It is for the lines nobody in the family can hold every week: a hot meal on the days you cannot get there, the laundry, a ride to the pharmacy, someone in the kitchen while he tells the story about the '82 Cardinals for the ninth time. A helper who takes that column is not replacing your mother. A helper is what stops the third column from quietly landing back on you. If he bristles, the Family Caregiver Alliance's advice on hiring in-home help is to tell him plainly that you need the help, and that accepting it is something he can do for you, not a sign of being abandoned.

"The house is a mess" is a symptom, not a character flaw

When a daughter says her father's house is a mess, she is rarely talking about dust. She means the mail is piled on the dining table, the fridge has three open cartons of milk, the towel has not been changed. Every one of those is a line that used to have a name next to it. Assign the line, and the mess goes away without anybody being told they live badly.

The exception is his own hygiene. A widower who has stopped showering is not a housekeeping problem, and the NIA's grief page says to let his health care provider know if he is having trouble with everyday activities such as personal hygiene, dressing, or fixing meals. That sentence is for his doctor, and there is a chapter on when grief needs an appointment.

Should Dad move in with me?

Maybe, eventually. Not this month. The NIA's grief guidance is to delay major life decisions until you are feeling better, and it names selling a home as exactly the kind of big change to avoid while grieving. A house with a working list in it buys everyone a year to decide without a moving truck in the driveway.

What to do tonight

  • Start the list on paper, with him, at his table. Ask what she did. Do not correct him.
  • Put his own name next to every line he can honestly hold this week, and say so out loud.
  • Tape three numbers to the fridge in large print: the pharmacy, his doctor, and you.
  • Pick the one third-column line that would give you the most relief, and decide who takes it before Friday.

When to ask the care team or the doctor

Call his doctor's office if he has lost weight you can see, has stopped bathing or dressing, or cannot manage a meal at all. The NIA's grief page says plainly to let the provider know about trouble with everyday activities. That is the doctor's call Mom used to make.

Pill questions go to the pharmacist, never to this site. Nobody here decides what he takes or when.

Questions daughters ask

Is it normal that Dad cannot do any of this?

Yes, in the plain sense that he never had to. The NIA describes couples who split household jobs so completely that the arrangement works right up until one person must do it all. Shrink the job to a list and hand him the lines he can hold.

Who pays for someone to take the third column?

Usually the family. Medicare's home health page says Medicare does not pay for homemaker services like shopping and cleaning unrelated to a care plan, or for personal care with daily living when that is the only care needed. Missouri's health department describes a private duty or private pay type of help at home, paid with private funds or insurance, that needs no physician's order for companion care.

What if my brother thinks Dad is fine?

Hand him the list and ask him to take a column. The NIA's advice for sharing caregiving is to work out the care needs together, when nothing is on fire, and decide who is responsible for which tasks.

The card on the fridgeWhat a good week looks like for Dad

  • The list of what Mom did is written down, and every line has a name next to it.

This chapter adds that line. The whole card, one line per chapter, is on the front page.

Next chapterDad isn't eating since Mom died: what to notice, what to tell his doctor, and the meal fixes that do not feel like charity

Non-medical help at home in west county and St. LouisCall (314) 405-0887